DePauw Stories

They are the last words one wants to hear from a doctor: “It’s terminal.”

“There’s fear. There’s panic. There are the ‘what ifs?’” said Julianne “J” Miranda, a certified end-of-life coach and a part-time faculty member in DePauw’s university studies program. “When a person is first facing that diagnosis … it’s really about first acknowledging what’s present in this moment for you.

“One of the challenges that we have culturally and societally in dealing with death, and grief as well, is that we see it as a process that leads somewhere. And that’s really counterintuitive to what is needed in the moment of anguish, if you will, or what’s needed in the moment of recognition.”

Miranda helps clients – people facing death or their loved ones – by listening, asking questions, delving into what is important to them under the circumstances. She takes it slow – “this is not a process that can be rushed” – and “a lot of those values, a lot of those concerns, a lot of those wishes will emerge.”

Her role, she said, is to “be a companion, to be a guide, to be a witness and to really help the person ask the question and live into the answers. I could tell you what I think and it doesn’t mean anything. … Allowing them to ask and answer their own questions brings them closer to what they value, to what is important to them, to them owning their perspective on death and their perspective on the relationships they have with others in the process of dying.”

Ideally, people should make decisions about their death when they’re healthy, and she works with healthy clients who are doing just that, she said. “We’re biological entities; we can’t really control how the body dies. But we can think about quality of life and end of life, so that’s a large part of what I try to do with individuals and families, even before a diagnosis.”

She asks clients, “What does a good death look like for you? What would it mean for you to have a peaceful death, to have a loving death? And so talking about what you want your family to know, who is the person who will make decisions for you when you can’t – that’s really called the advanced care planning process. And that’s a large part of what I do with individuals and families.”

But “the fundamental hurdle is people don’t want to talk about death,” she said. “We’re afraid of it. We’ve stigmatized it. We made it uncomfortable.”

A good death, she said, “is well prepared. … All those things that we need and want to say in terms of closure, with those other parts of our life, those become possible when we think about death. I think when we become more in control of all the parts we can control – obviously we can’t control how the body dies – we can control our mind, our spirit, our attitude. When we have that control, fear lessens. …

“All of the work that we have to do toward a peaceful death is within … There are wonderful resources about death and dying, but there’s no better expert on your life than you.”